Social Share:
When:
November 21, 2019 4:00 pm – November 21, 2019 8:30 pm (PST)
Where:
Hyatt Regency La Jolla
3777 La Jolla Village Drive
San Diego, California 92122
Imagine this…
An invisible world of microorganisms brought to light by researchers, charted by technology, and turned into discoveries by pioneers like you…
Discoveries that recognize diseases, pinpoint treatments, optimize medicines and identify cures. Discoveries that secure a better future for our children and challenge them to take us further…
To democratize the future of medicine, to empower every individual and to turn that same world of microorganisms into renewable biofuels that can propel us forward into the future of We.
Imagine this: a world without limits.
Bring your imagination to Biocom’s Annual Celebration of Life Dinner on November 21st, 2019 at the Hyatt Regency La Jolla At Aventine where we’ll recognize life science achievements from the past year and set the stage for a limitless 2020.
Keynote Speaker: Gay Grossman
Gay has been active in the Rare Disease community for over two decades and continues her efforts to build and support patient and family advocacy. Ten years ago, when she first spoke, she was the mother of a 12 year old daughter without a diagnosis. She shared her daughter’s experience of being physically disabled in a typical world. Soon the subject changed to how she and her husband made accommodations in schools and how they learned about the science which might someday be available and lead them to a diagnosis.
Finally in 2013, Gay was able to speak about the experience of getting a genetic diagnosis through whole genome sequencing, after not having a diagnosis for 15 years.
Today her daughter is an adult and does her own advocacy. Gay has recently looked in the mirror and changed her speaking subject to her own Rare Disease experience of being a mother, the primary caregiver, and what it was like to live and love her daughter not knowing what was wrong. Together, Gay and her husband have built a dedicated team who help them keep the science moving towards a treatment. Together they founded ADCY5.org, the foundation for ADCY5-related dyskinesia. They are advocates of shared data and patients owning their data. They maintain their focus to help all Rare Disease patients. Due to their work, this foundation now supports world-renowned researchers who study the gene, while they continue to build a community of hundreds, when they started with only 1.
Gay is currently the Director of Patient Engagement at Neurogene Inc.
FDA Spotlight: Anna Abram, Deputy Commissioner for Policy, Legislation, and International Affairs U.S. Food and Drug Administration
Anna Abram is Deputy Commissioner for Policy, Legislation, and International Affairs for the U.S. Food and Drug Administration. She plays a critical role in overseeing the development and implementation of key policy initiatives and provides strategic policy direction to advance FDA’s mission and vision of protecting and promoting public health.
***For full Bio read below!
Thank you to our Sponsors:
Table Pricing (Seats 10)
Biocom Member: $2000
Non-Member: $2500
**Purchasing a table of 10 provides you with premium table placement and seating, company name listed in event program and guaranteed seating together for your group of 10.
*If you are having issues purchasing a table of 10, please email Angela Wieszchowski at [email protected]
Individual Tickets
Biocom Member: $200
Non-Member: $300
*All individual ticket buyers will be placed into general seating tables. If you anticipate 5 or more colleagues attending as a group, we encourage you to purchase a table of 10 to guarantee seating next to one another.
*Please note: There will be no refunds on purchased tables or general admission tickets.
|
Biocom Member Today’s Price: 200 |
|
Non-Members Today’s Price: 300 |
|
Biocom Member Table of Ten Today’s Price: 2000 |
|
Non-Member Table of Ten Today’s Price: 2500 |
